A lot of our activities this year have revolved around two of Sarah’s friends moving to Virginia. One friend moved here at the beginning of March, with Paul driving to Arkansas, loading up Sarah’s car, and driving back to Virginia. The second came in June, and involved Sarah flying to North Dakota, renting an SUV, helping her friend pack up her things, and driving back to Virginia. We have been helping both friends navigate the health care, employment, and housing issues that one faces upon moving across the country. They have enjoyed the attractions here, especially the Smithsonian museums and are settling in.
In March, Paul traveled to Uzbekistan, visiting the cities of Khiva, Bukhara, Samarkand and Tashkent. He enjoyed it more than he expected and wants to go back in 2020 with Claire. He was there for the Navruz holiday (first day of spring), when there are celebrations all over. The architecture and crafts were very interesting and he came home with some amazing knives and beautiful paintings on antique paper that is quite old. Meeting the artists also was a highlight.
| Paul was invited to join a group meal during Navruz. |
| Some entertainment during Navruz celebrations. |
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| We had some great food in Albania, including these fried sardines. |
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| This is typical of the scenery and the amount of traffic. |
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| There are castles all over Albania. We had a view of this one from our hotel in Girocaster. |
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| A view of the Adriatic from a restaurant in Himara. The coast is lined with resorts. |
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| What better way to spend a summer day! |
Daniel spent two weeks at the Easter Seals/UCP camp in the mountains near Roanoke that he has attended for several years. He had a very good time. The camp always has great staff who are so attentive to the campers, and the camp activities are adapted for the needs of each camper. Swimming is always a favorite activity.
| Daniel with camp staff. |
He also participated in a camp for people who use AAC (augmentative and alternative communication). The camp is held at a hotel near Pittsburgh. Activities are designed to give the campers opportunities to interact using their communication devices in a variety of situations. In addition to sessions at the hotel, we went on a tour of the baseball stadium (beautiful view from the press box!), took a boat trip on the three rivers, and visited the National Aviary.
He has been participating in a day program three days a week since his school days ended in 2017. He also enjoys a number of programs set up by the Fairfax County Therapeutic Recreation program, such a a dance club, Saturday morning activities, etc. One of his favorite activities is bowling, which is does with a group called KEEN twice a month. We have a bowling alley less than a mile from our house that is in the process of being renovated. We plan to take Daniel there to bowl when they reopen. He also participates in some local activities sponsored by other groups, such as swimming and parties by the Joey Pizzano Memorial Fund.
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| More swimming for Daniel. |
Sarah has made great progress in her academics. She is on track to finish her associates degree in May, so now she needs to decide where she wants to go for her bachelor’s degree. It has taken her awhile to get there because of her wide-ranging interests. She is now focusing on policy development, environmental issues, and process improvement and is trying to decide how to implement these interests.
She has done a lot to help her friends who have moved here.
Some of her time goes to some work in the Minecraft environment, where she is a lead moderator, trainer, and does other things her parents don’t actually understand. Minecraft is where she met her friends who moved here, as well as other online friends with whom she has been able to connect in person, including via a trip she took to England in July.
Some of her time goes to some work in the Minecraft environment, where she is a lead moderator, trainer, and does other things her parents don’t actually understand. Minecraft is where she met her friends who moved here, as well as other online friends with whom she has been able to connect in person, including via a trip she took to England in July.
This fall, Claire became gallery director for the artists' cooperative where Paul and Sarah sell their work (Artisans United Craft Gallery). There are a lot of things to do to help the gallery be successful, so she just needs to make sure this does not become all-consuming.
One of the activities that took a lot of time and energy this fall was deciding on a new van that is adapted for wheelchair access. There have been a lot of changes in these vehicles since our first van, which we obtained in 2004. It was about to completely fall apart, so we are very happy to have a new one. (Claire was stranded in traffic in August, which was pretty much the last straw. We did not want to have Daniel and his aide in that situation and felt fortunate that so far all the bad breakdowns occurred when he was not in the van.) Claire picked up the new van on December 19th. It is such an improvement!
So as we happily drive off into the new year, we hope yours is happy and healthy.
Claire, Paul, Sarah, and Daniel
Claire, Paul, Sarah, and Daniel






